I'm of the generation whose mothers made them write thank you notes for gifts received. Consider this an open thank you note to the gift my daughter's elementary school gave her and us. Continue Reading
February 11, 2016
How Down syndrome prenatal screening’s administration is about elimination … & what’s needed to change that
In her column in Forbes, Kavin Senapathy, a self-styled scientific mythbuster, took on claims that prenatal genetic testing has as its purpose eliminating those with Down syndrome. Unfortunately, her column retold myths and she based her mythbusting on fantasy. Continue Reading
January 19, 2016
The Parent’s Guide to Down Syndrome: A Review
There's a new resource for parents of children with Down syndrome. It may be just right for you. Continue Reading
December 23, 2015
Our story: A compliment at Chick-fil-A
A stop on a roadtrip, and the simplest of compliments, reminded me of how good some people can be towards others, particularly those who happen to have Down syndrome. Continue Reading
December 1, 2015
3 Steps to Increasing Down Syndrome Awareness
Today is #GivingTuesday. Here are 3 easy steps you can take today to increase Down syndrome awareness with medical professionals and new and expectant parents. Continue Reading
September 21, 2015
Balancing prenatal information: medical outreach by local Down syndrome support organizations
Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap. Continue Reading
September 17, 2015
A birthday card & David Foster Wallace’s This is Water
Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth. Continue Reading
August 5, 2015
New Resource for World Breastfeeding Week
World Breastfeeding Week is the first week of August. Here is a resource to help new moms with breastfeeding an infant with Down syndrome. Continue Reading
July 20, 2015
The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends
How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading
Recent Comments