When expectant moms learn more about prenatal testing, what do they choose?

Yesterday's post shared how the Department of Defense/Veterans Administration guidelines recognize the need for genetic counseling when offering prenatal testing. One of the methods was group counseling, in which the guidelines said participants learned best as compared to individual counseling or decision aids. What do participants choose then, that have learned best through group counseling? Continue Reading

DoD: counseling needed for Down syndrome prenatal testing

On Monday, Veterans Day, I featured the prenatal testing guidelines for the Department of Defense (DoD) and Veterans Administration (VA). Those guidelines make clear the need for patient counseling when offering prenatal testing for Down syndrome and other genetic conditions. Continue Reading

Happy Anniversary for Down Syndrome Prenatal Testing

This blog was launched on November 12, 2012. Here's why I launched the blog, the most viewed post from the past year, a post needing some more views, and a request if you've found this blog useful over the past year. Continue Reading

The Case for Conserving Disability

Following up on a previous post, here's highlights from "the case for conserving disability" by Rosemarie Garland-Thomson. I hope the quoted selections below suggest the ability to completely change your perspective on disability that Garland-Thomson's article did when I read it. Continue Reading

On having a brother or sister with Down syndrome

Today is the last day of National Down Syndrome Awareness Month. And, tonight, my son and daughter will go trick-or-treating for Halloween. What is the effect on siblings of having a brother or sister with Down syndrome? Continue Reading

News coverage on the Kentucky Down Syndrome Information Act

In 2013, as part of October being National Down Syndrome Awareness Month, WHAS-11, the local ABC affiliate, hosted my daughter and me for a segment on the Kentucky Down Syndrome Information Act.  Continue Reading

Down syndrome & National Pregnancy and Infant Loss Month

October, it turns out, is a month devoted to raising awareness about many things. In addition to being Down syndrome awareness month, it is also National Pregnancy and Infant Loss Month. Here's where the two overlap. Continue Reading

What’s the point of Down syndrome awareness?

October is National Down Syndrome Awareness Month. But, what's the point of raising awareness about Down syndrome? Continue Reading

Noninvasive prenatal testing should be a secondary screen

The headline isn't my conclusion. Tellingly, it's the result arrived at by a researcher for one of the Non-Invasive Prenatal Screening (NIPS) labs. And, one of the labs that would prefer if the opposite were the case. Continue Reading