Thank God it's Friday because, while there was a lot of good news this week, it had some pretty bad news as well. And, that's beyond Atlanta coming to a stop by a few inches of snow. In bioethics, there's this idea called "structural violence," where little and big things in a society can enact violence on those who are in the minority or under-privileged. These headlines show there's still structural violence against those with intellectual disabilities. Continue Reading
January 9, 2014
#Toast4Ethan
Today would have been Robert Ethan Saylor's 27th birthday. His mom has asked everyone to think of Ethan today and what his legacy will be. Here are my hopes for what his legacy will be. Continue Reading
October 17, 2013
What have we learned about the new Down syndrome prenatal test?
In 2011, a new prenatal test for Down syndrome entered the market offering earlier, safer, and more accurate results. What have we learned about this new technology since then? Continue Reading
September 27, 2013
A Down Syndrome Mid-Life Crisis
I turn 40 this weekend. As I look back and look forward, I see a mid-life crisis for Down syndrome. Continue Reading
September 25, 2013
Equal justice under law, no matter how many chromosomes
In January, a 26-year old man was killed outside a movie theater while being restrained by off-duty police officers. His crime: not paying for a movie ticket. Why isn't more known about what caused this homicide? Continue Reading
June 2, 2013
The world doesn’t get to have it both ways with Down syndrome
Last week, my daughter was assessed to determine whether she qualified for a waiver under our state's Medicaid program. When informed that she may be initially denied--and many wrongfully are--I thought, "you don't get to have it both ways." Continue Reading
May 28, 2013
With Down syndrome, what are we choosing to invest in?
I wrote previously about how some describe the damage of disability as the lack of support by society for individuals with disabilities. It prompts the question: with Down syndrome, what are we choosing to invest in? Continue Reading
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