So says Zuzana Deans, Angus Clarke & Ainsley Newson in their article in the issue of Bioethics devoted to whether a new bioethics is needed for non-invasive prenatal screening. Continue Reading
February 20, 2015
What’s wrong with the Yahoo! story of why a mom terminated her pregnancy for Down syndrome
What's wrong is that the decision was made after receiving false information, not all the information, and without seeking more information. And, what's more, this is happening so often as to be the norm of how prenatal testing is administered. Continue Reading
February 17, 2015
The trade-offs of prenatal testing for Down syndrome
In the first article in the January 2015 edition of Bioethics devoted to prenatal genetic testing, Jenny Hewison addresses the psychological trade-offs pregnant women must make with prenatal testing decisions. Continue Reading
February 2, 2015
COMMENTS DUE TODAY: FDA considering regulating cell free DNA testing
The FDA is considering regulating laboratory developed tests ("LDTs"). MaterniT21, verifi, Harmony, and Panorama are all LDTs. Today is the last day to submit comments to the FDA. Here's mine on why the FDA should regulate LDTs. Continue Reading
January 13, 2015
cell free DNA is NOT Diagnostic
While this point has been made in multiple professional statements and news reports--including here--the Society for Maternal-Fetal Medicine (SMFM) felt it worth reminding the world that cell free DNA is NOT diagnostic. Continue Reading
January 12, 2015
Ohio passes the Down Syndrome Information Act
Closing out 2014, Ohio became the latest state to pass the Down Syndrome Information Act, making it the fifth state to do so in 2014 and seventh overall. Continue Reading
January 7, 2015
Burden or caregiver?
A report on elderly parents of individuals with Down syndrome living longer lives offers a perspective for expectant parents to consider. Continue Reading
December 31, 2014
Down Syndrome Prenatal Testing Year in Review: 2014
The year 2014 mirrored the paradoxical trajectory of Down syndrome: just as things have never been better for individuals with Down syndrome, fewer are choosing to welcome children with Down syndrome into their families. Continue Reading
December 29, 2014
Top 5 posts of 2014
As we near the end of 2014, here's a look back at the top posts from this year. Continue Reading
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