It is coming up on two years since Non-Invasive Prenatal Screening (NIPS) was introduced. The New England Journal of Medicine recently featured an article raising concern over how the new blood test for Down syndrome is being used. It cautions against the new test being used in the general population. Continue Reading
July 24, 2013
Down syndrome is not incompatible with life
I've talked about how receiving a diagnosis of Down syndrome can be a gut-punch. One that hits you. But, there are other perspectives on a Down syndrome diagnosis. Continue Reading
July 16, 2013
Wear a cool t-shirt at a conference & get a free book
Many of my readers will be traveling this week to Denver for this year's conference for the National Down Syndrome Congress (NDSC). Here's an opportunity to get a free book simply by looking cool at the conference. Continue Reading
July 15, 2013
Syngamy: when you became a unique individual
Several years ago, I learned about "syngamy." It informed how we are to think of one another. I had reason to be reminded of it for a couple of reasons this week, one circumstantial and one sad. Continue Reading
July 9, 2013
USA Today discriminates against Down syndrome
In a recent editorial, USA Today's editorial board expressed "Our view" that discriminates against Down syndrome and perpetuates the societal stigma against those with the genetic condition. Continue Reading
June 26, 2013
What every woman needs to know about Down syndrome prenatal testing, a review
Earlier this year, Amy Julia Becker released a new book entitled, What Every Woman Needs to Know about Prenatal Testing: insight from a mom who has been there." As with everything Becker writes, it intertwines compassion with needed analysis of a decision all pregnant women will confront in this new age of prenatal testing. Continue Reading
June 24, 2013
This week, give a lifeline to expectant parents
This week, a purchase from Sevenly will provide a book that gives critical information to expectant parents who have recently learned about a prenatal diagnosis of Down syndrome. With your support, parents will receive tools and support, empowering them to cope and prepare for the challenges and rewards in store for them. Your purchase will give much more than a book, it will give a family a lifeline. Continue Reading
June 18, 2013
The power of context: how what’s missing informs the context
In previous posts, I have asked whether Down syndrome is already disappearing and the power of context as the remaining element to tip prenatal testing to the point of an epidemic. Here's how the first post reinforces the second. Continue Reading
June 15, 2013
For Father’s Day: what to do after a Down syndrome prenatal test result
Last week, a mom posted what she would like a mother with a Down syndrome prenatal test result to know. It inspired Tim Shriver, Chairman and CEO of Special Olympics, to offer his own thoughts. So, for what it's worth, on this Father's Day, here's my two cents. Continue Reading
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