In New Delhi, India a baby received multiple injections of human embryonic stem cells as an experimental treatment for Down syndrome. Any ethical issues here? Continue Reading
October 13, 2016
GONE: estimate reduced by 20% of people with Down syndrome in United States
In 2013, researchers estimated that the total number of people living in the United States was 40% less than the historically cited number. Three years later, that estimate has been revised down further by 20%. Continue Reading
August 25, 2016
Abortion: hard to talk about when no one will say the word
The American College of Medical Genetics & Genomics (ACMG) issued an updated statement on how cell free DNA screening should be done. It's not clear, though, why cfDNA screening should be done. Continue Reading
April 21, 2016
Abortion and Down syndrome prenatal testing
Two developments in the Spring of 2016 have focused on abortion and Down syndrome prenatal testing. Continue Reading
April 14, 2016
Response to Art Caplan: provide ALL the recommended information with prenatal testing for Down syndrome
The headline for Art Caplan’s March column for Medscape asked “Disclosing Down syndrome to pregnant patients: must you give an upside?” In it, Caplan raises concerns about recent legislative efforts concerning delivering test results for Down syndrome. His concerns, however, are not based on what those laws actually require. Continue Reading
December 14, 2015
ISIS issues fatwa to kill children with Down syndrome: is that wrong?
The Islamic State in Iraq & Syria (ISIS) has issued a fatwa to kill children with disabilities, including those with Down syndrome. Is this wrong? Continue Reading
November 2, 2015
Sequenom’s Whole Genome Sequencing: Reckless Prenatal Care
Sequenom, the maker of MaterniT21, has announced a further expansion of its testing: MaterniT Genome. This continues the reckless practice of prenatal genetic testing. Continue Reading
September 17, 2015
A birthday card & David Foster Wallace’s This is Water
Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth. Continue Reading
August 25, 2015
CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives
In discussing a recent state bill to ban Down syndrome selective abortions, CNN's Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling. Continue Reading
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