A recent news story reported as a surprising result that hundreds of parents had volunteered to adopt a child when the call was put out. The turnout was indeed overwhelming, but in the end only one couple will adopt this child. Hopefully the hundreds of others will reach out to adopt the many other children with Down syndrome waiting to be adopted. Continue Reading
June 24, 2013
This week, give a lifeline to expectant parents
This week, a purchase from Sevenly will provide a book that gives critical information to expectant parents who have recently learned about a prenatal diagnosis of Down syndrome. With your support, parents will receive tools and support, empowering them to cope and prepare for the challenges and rewards in store for them. Your purchase will give much more than a book, it will give a family a lifeline. Continue Reading
May 29, 2013
What to do with a poorly wrapped gift?
A featured letter to the editor posed a question that offers a different perspective on a prenatal test result for Down syndrome. Continue Reading
May 9, 2013
Free Webinar Next Tuesday: New Prenatal Testing Recommendations
Next Tuesday, May 14, 2013, Down Syndrome of Affiliates in Action (DSAIA) is hosting a webinar where I am the presenter. The webinar will cover the recent professional statements on prenatal testing for Down syndrome. If you are like me and gain a new level of understanding hearing information presented to you, then this webinar should help further explain what I've been covering on the latest in prenatal testing for Down syndrome. DSAIA has graciously made the webinar available to the public Continue Reading
May 8, 2013
Really, you are not alone
Mother's Day is this Sunday. Here's a chance to provide a "lifeline" for expectant mothers. Continue Reading
May 6, 2013
You are not alone
Last Thursday, USA Today featured a front-age, below-the-fold story by Liz Szabo on the recent advances in Down syndrome prenatal testing. The report shares an important recommendation for those receiving a prenatal test result. Continue Reading
April 29, 2013
What price to do prenatal testing right?
The recent Wall Street Journal report by Christopher Weaver on Non-Invasive Prenatal Screening (NIPS) included a number that suggests how much money is in the NIPS market. But what else should that money be going towards? Continue Reading
April 17, 2013
One of the most compassionate missions in the United States
Did you know that there is a national registry of families wanting to adopt a child with Down syndrome? The registry is maintained by the National Down Syndrome Adoption Network (NDSAN), which has one of the most compassionate missions in the United States. Continue Reading
April 10, 2013
The ACMG steps out from the crowd with NIPS policy statement
Along with the ISPD, the American College of Medical Genetics and Genomics (ACMG) issued its own policy statement on the newest form of prenatal testing for Down syndrome. The ACMG statement says some of the same things as the other professional medical organization positions, but it sets itself apart on several key points. Continue Reading
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