Wednesday, August 22, 2018, Down Syndrome Affiliates in Action will host a webinar on building relationships with medical professionals beginning at 1 pm, EST. I hope you will join us for this training and discussion that is vital if new and expectant parents' experiences are to improve when being told a test result for Down syndrome. Continue Reading
May 30, 2018
Our Story: Choosing to take the journey
Today, I leave with my two kids, towing a travel trailer, to drive to Yellowstone National Park. The trip will be fraught with challenges and risks. Yet, we are choosing to take the journey. Continue Reading
May 13, 2018
DSPTP Episode 3: Happy Mother’s Day
In episode 3, in honor of Mother's Day, I talk about the miracle of life, how more moms than ever are choosing to have a child with Down syndrome, and the important role moms play in supporting so many other families. Continue Reading
June 12, 2017
Adoption: Absolutely Beautiful
Here is a nine-minute video that introduces the National Down Syndrome Adoption Network and its director, Stephanie Thompson. Continue Reading
July 15, 2016
A new web app for Down syndrome prenatal resources
There is a new way to access in more ways than ever the most widely-recognized and acclaimed resource for parents receiving a prenatal test result for Down syndrome. Continue Reading
February 17, 2016
Envisioning a life with a child with Down syndrome
Envisioning a life with a child with Down syndrome is one of the biggest challenges for most expectant parents receiving a prenatal test result. Here's how the testing laboratories' images frame that future and what resources are available to help patients see the possibilities of a future with a child with Down syndrome. Continue Reading
February 11, 2016
How Down syndrome prenatal screening’s administration is about elimination … & what’s needed to change that
In her column in Forbes, Kavin Senapathy, a self-styled scientific mythbuster, took on claims that prenatal genetic testing has as its purpose eliminating those with Down syndrome. Unfortunately, her column retold myths and she based her mythbusting on fantasy. Continue Reading
February 4, 2016
Our story: IQ, IEPs, & Injustice
Yesterday, I attended a three-hour IEP meeting for my daughter. It demonstrated the systematic injustice that disables those it labels disabled. Continue Reading
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