I'm having the pleasure of reading Amy Julia Becker's newest book, small talk. I expect you will enjoy it as well. Continue Reading
It’s official: Down syndrome is not suffering
Richard Dawkins' tweet on it being immoral not to abort a pregnancy positive for Down syndrome generated many responses. A point of consensus emerged: a life with Down syndrome does not increase suffering. If anything, it increases happiness. Continue Reading
Which is the harder choice after a prenatal diagnosis: continuing or terminating?
A recent news story presents the question all expectant mothers receiving a prenatal test result for Down syndrome will have to answer for themselves: which is the harder choice, continuing the pregnancy or terminating it? Continue Reading
The 2014 NDSC Convention: reuniting & making new friends
The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends. Continue Reading
Narrative ethics: the power of story in prenatal testing for Down syndrome
This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis. Continue Reading
Kathy Ratkiewicz, mother, advocate, friend, RIP
The Down syndrome community has lost an advocate and leader. Continue Reading
Delaware and Maryland join Massachusetts and Kentucky in enacting laws to provide information with a Down syndrome test result
Last week, Governor O'Malley of Maryland and then Governor Markell of Delaware each signed laws requiring that their state agencies provide accurate, up-to-date information about Down syndrome for parents receiving a test result. They join Massachusetts (2012) and Kentucky (2013) in passing such legislation. Continue Reading
Support moms grieving their lost child
This Mother's Day, will you support those mothers who are grieving the child they lost? Continue Reading
We shouldn’t have to justify children with Down syndrome being born
Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world. Continue Reading
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