A good friend found this photo of my kids earlier this week and posted it to Facebook. I found myself transfixed by it. I wonder if you see what I see? Continue Reading
Search Results for: our story
February 13, 2014
Our story: our son turns eight years old
Yesterday, I spent most of my time tracking down the situation for a local 6-year old girl with Down syndrome who had been abandoned by her mother for 6 days. Fortunately, this child not only survived (which should impress anyone that a 6-year old with Down syndrome survived on her own for 6 days), but has been reunited with a loving foster family who had intended to adopt her before her mother took back custody. Comforted in knowing this girl is in a safe place, I want to turn to someone who Continue Reading
February 3, 2014
Share your story about your prenatal experience
In today's news collection: researchers are seeking mothers to share their prenatal experience; a mom wishes she had had the wisdom gained after having her child with Down syndrome when she first viewed her on ultrasound; and, a mom sets up a support group for parents whose only child has Down syndrome. Continue Reading
December 10, 2020
Sixth Circuit Court of Appeals Allows Tennessee to Enforce Down Syndrome Abortion Ban
The Sixth Circuit Court of Appeals has stayed an injunction, thereby allowing the State of Tennessee to enforce its "Down syndrome abortion ban". Will it? And, what will this lead to? Continue Reading
January 26, 2016
Sarah Knapton: Please update your inaccurate, biased report on the NHS offering NIPT to high-risk mums
Sarah Knapton reports in The Telegraph that Britain's National Health Service will offer non-invasive prenatal testing (NIPT). The inaccuracies and biases of the report require an update. Continue Reading
October 19, 2015
Rewriting the story of Down syndrome
For many, thanks to deinstitutionalization, education inclusion, and medical treatments, they know a different Down syndrome than others. This new knowledge is rewriting the story of Down syndrome. Continue Reading
July 20, 2015
The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends
How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading
February 20, 2015
What’s wrong with the Yahoo! story of why a mom terminated her pregnancy for Down syndrome
What's wrong is that the decision was made after receiving false information, not all the information, and without seeking more information. And, what's more, this is happening so often as to be the norm of how prenatal testing is administered. Continue Reading
July 10, 2014
Narrative ethics: the power of story in prenatal testing for Down syndrome
This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis. Continue Reading
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