Today is World Down Syndrome Day. I have an op-ed in our local paper; a webinar at noon on prenatal testing; a new organization supporting moms launches; and your support is needed! Continue Reading
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March 18, 2014
3 things about 3/18, National Trisomy 18 Awareness Day
Today is National Trisomy 18 Awareness Day, so chosen as "3/18" represents the genetic cause of Trisomy 18, a third copy of the 18th Chromosome. Here are three things about Trisomy 18. Continue Reading
March 17, 2014
You are not alone: people are working to make a better life for individuals with Down syndrome
This past weekend, I had the unexpected honor of receiving an award for my service as Down Syndrome of Louisville's past president. I share these remarks for a couple of reasons. Continue Reading
March 12, 2014
Open letter to Georgia Judicial Qualifications Commission: Are women with Down syndrome safe in Georgia?
Judge Christopher McFadden issued an order overturning a jury verdict finding a man guilty of raping and sodomizing a 24-year old woman with Down syndrome, citing as one of his reasons that she had not acted "like a victim." Beyond his apparent judicial incompetence, this ignorant reasoning deserves discipline to restore trust in the Georgia judicial system. Continue Reading
February 18, 2014
Erecting and tearing down barriers to inclusion
Between attending the Society for Maternal-Fetal Medicine annual conference one week, celebrating my son's birthday the next, and now preparing to attend the Down Syndrome Affiliates in Action conference, I have a backlog of news headlines I've been meaning to share. Here are some on how measures large and small can impact and include those with Down syndrome and other disabilities: Continue Reading
January 29, 2014
From the News Page: Son with Down syndrome “a gift from God” says Rep McMorris Rodgers
Today's news features only positive news: Rep. Cathy McMorris Rodgers talked about her son and Down syndrome in response to President Obama's State of the Union address, a Chelsea football club, an Irish cartoon, a toddler wanting to get on the Ellen show, a movie screening, and an image that answers what to call someone with Down syndrome. Enjoy. Continue Reading
January 27, 2014
International Holocaust Remembrance Day: do we remember?
Today is International Holocaust Remembrance Day. But do we remember? Continue Reading
January 27, 2014
From the News Page: Inspiraporn, the State of the Union, & Down Syndrome Health Care Guidelines
From the News Page: Co-Chair of the Congressional Down Syndrome Caucus, and mom, Rep. Cathy McMorris Rodgers will deliver the Republican Response to tomorrow's State of the Union address. Dr. Skotko delivers a Grand Rounds presentation on updated Down syndrome health care guidelines. A St. Louis OB writes about the new prenatal testing. A panel of parent/authors speak tonight at Columbia. And, a mom takes on Inspiraporn! Continue Reading
January 24, 2014
From the News page: Mothers’ experience
Over at the News page, today's entries feature the lessons learned by moms raising their children with Down syndrome. Continue Reading
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