This news report is far better than most I have seen in providing balance in the information shared about the new non-invasive prenatal testing (NIPT) for Down syndrome (and it’s the first I ever remember seeing where an amniocentesis is actually filmed as it is performed). That said, what words or phrases or the […]
Continue reading... January 14, 2013
Paradise, interrupted
Bonnie Rochman, a columnist for TIME magazine, has a new post about her trip to paradise being interrupted. It informs how a diagnosis for Down syndrome is delivered and processed by expectant parents. Rochman writes about her son entering a T-shirt shop selling shirts that made fun of individuals with intellectual disabilities. By coincidence, a […]
Continue reading... January 14, 2013
Guess who was at the 2013 Golden Globes?
Last year, it was a photo with George Clooney. This year, a photo with Dame Helen Mirren. I doubt Lauren’s parents (or anyone for that matter) would have expected at the time the diagnosis of Down syndrome was delivered that Lauren would go on to have a recurring role in a smash TV show and […]
Continue reading... January 9, 2013
An Open Letter to NDSS, NDSC, and GDSF: Answers Still Needed
It has been over 40 days since the open letter to NDSS, NDSC, and GDSF was posted seeking answers to a few questions. Tweets to the organizations and an e-mail to the leadership of each organization with a copy of the open letter provided also were sent. The holidays, understandably, may have interfered with a response being […]
Continue reading... January 8, 2013
Does it matter if nature has a moral authority?
Spring cleaning suggests that is the season when cleaning gets done. But, as an attorney, the holidays often provide a lull where we can bring some order to the stacks of papers that have accumulated throughout the year. In doing so, I found a study that I read quite some time ago, but is one […]
Continue reading... January 7, 2013
We Know Not What We May Be
During the winter break, I tried spending as much time as possible with my family. I treasure how, at the start of December, the day after we put the Christmas tree up, my daughter came downstairs, threw down both her hands, and, exasperated, said, “Daddy–where are all the presents?!” A recent post by Amy Juila […]
Continue reading... December 6, 2012
In Memoriam: Donna Lee Preston, An Unexpected Life
On the “About Me” page, I mention that I am involved with several organizations devoted to serving individuals with intellectual disabilities. A week ago, a member of one of those organizations passed away. Her name was Donna Lee Preston, and she lived an unexpected life. Donna was born in another era for individuals with Down […]
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