This past weekend was the Down Syndrome Affiliates in Action conference. Consistent with past years, the schedule featured sharing sessions and breakouts on best practices for medical outreach and new and expectant parent support. With the advances being made in prenatal testing and research showing that the need for care and support is a key […]
Continue reading...What is a legacy?
In this post-modern, existential age, it can cause some to wonder what’s the point of anything. How can we say anything we do truly matters? Well, on Monday, we said goodbye to a lady whose actions many families would say mattered to them.
Continue reading...What do you say when you hear the “R-word”?
Recently, my wife and I went out for a nice evening. That was the intention, at least. Then, at dinner, we overheard from our neighboring table the “r-word.” I wonder, what do you say when you hear the “r-word”?
Continue reading...Getting ready for the Down Syndrome Affiliates in Action conference
What should you do if you are attending the Down Syndrome Affiliates in Action Annual Conference?
Continue reading...Two birthdays with competing legacies
Ten score and four years ago today, Abraham Lincoln was born. That same day 204 years ago also was the birthday of Charles Darwin. The competing legacies of these two men twist through history like the spiraling parallel sides of the DNA molecule.
Continue reading...What I hope Daniel Day-Lewis says at the Oscars
Daniel Day-Lewis is the odds-on favorite to win a historic third Best Actor Oscar. I hope he will say what we thought he would say in 2008, and speak to the billion people watching on the value of his brother-in-law.
Continue reading...I didn’t expect them to be as good as they are
The featured video is about the Jensen-Schmidt Tennis Academy for Down syndrome and runs around 5 minutes. The Academy is a two-day program where individuals with Down syndrome of all ages are paired one-on-one with volunteer instructors to take them through drills and learn tennis basics. The Academy was the inspiration of a father of […]
Continue reading...We are what we decide to be
One mother’s take on raising her daughter with Down syndrome, who she describes as “perfect.” As though in response to the quote I wrote about at this post, this mom has a different perspective: that her daughter is her “every day reminder that we are what we decide to be.”
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