In honor of this week’s July 4th holiday, I wonder whether the administration of Down syndrome prenatal testing will abide by America’s creed.
Continue reading... July 1, 2013
Is it already happening? Tracking Down syndrome births so far in 2013.
In previous posts, I have written of a concern that others have shared about whether Down syndrome will disappear as prenatal testing advances. Down Syndrome Affiliates in Action (DSAIA) has posted a request of mine seeking groups to report their numbers of referrals for births so far in 2013. This is prompted by one organization […]
Continue reading... June 26, 2013
What every woman needs to know about Down syndrome prenatal testing, a review
Earlier this year, Amy Julia Becker released a new book entitled, What Every Woman Needs to Know about Prenatal Testing: insight from a mom who has been there.” As with everything Becker writes, it intertwines compassion with needed analysis of a decision all pregnant women will confront in this new age of prenatal testing.
Continue reading... June 24, 2013
This week, give a lifeline to expectant parents
This week, a purchase from Sevenly will provide a book that gives critical information to expectant parents who have recently learned about a prenatal diagnosis of Down syndrome. With your support, parents will receive tools and support, empowering them to cope and prepare for the challenges and rewards in store for them. Your purchase will give […]
Continue reading... June 20, 2013
How do you view those labeled “handicapped”?
I was part of the generation that grew up with Mr. Rogers. In his caring way, he taught us many things. Some videos now available on YouTube share his lesson in word and deed on how to view others, particularly those with disabilities.
Continue reading... June 19, 2013
The Shape of the Eye: our diagnoses do not define us
The Shape of the Eye was originally published in 2011. This Spring, it was re-issued in paperback and is enjoying the attention it deserves. A memoir by George Estreich about many things, but prompted by the birth of his daughter Laura, it has much to share for all of us.
Continue reading... June 18, 2013
The power of context: how what’s missing informs the context
In previous posts, I have asked whether Down syndrome is already disappearing and the power of context as the remaining element to tip prenatal testing to the point of an epidemic. Here’s how the first post reinforces the second.
Continue reading... June 15, 2013
For Father’s Day: what to do after a Down syndrome prenatal test result
Last week, a mom posted what she would like a mother with a Down syndrome prenatal test result to know. It inspired Tim Shriver, Chairman and CEO of Special Olympics, to offer his own thoughts. So, for what it’s worth, on this Father’s Day, here’s my two cents.
Continue reading... June 14, 2013
It’s not about information; it’s about selling information
Yesterday, the United States Supreme Court ruled that genes cannot be patented. This may not stop competing NIPS labs from trying to enjoin their competitors. But, the ruling reveals a point that gets lost in the celebration of genomics.
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