A resource for information-seekers
In his recent book, Rod Dreher shares the story of his sister Ruthie’s final time on earth battling lung cancer and how it led him back to his small hometown in Louisiana. The book caused me to weep, and has a message worth sharing here.
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Following up on the news from yesterday, headlines reporting on the development where scientists have “turned off” the extra 21st Chromosome that is the basis for Down syndrome spread a telling message of what news editors think will grab the public’s attention:
Continue reading...In an ironic twist, while traveling to present at a conference on prenatal testing and Down syndrome, news broke that they may have “fixed” Down syndrome. The reactions to this news may change perspectives on Down syndrome.
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The recent press releases by the American College of Obstetricians and Gynecologists (ACOG) and the video above show the inconsistency in policy positions in obstetric care. Regarding Down syndrome prenatal testing, they shouldn’t get to have it both ways.
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Many of my readers will be traveling this week to Denver for this year’s conference for the National Down Syndrome Congress (NDSC). Here’s an opportunity to get a free book simply by looking cool at the conference.
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Several years ago, I learned about “syngamy.” It informed how we are to think of one another. I had reason to be reminded of it for a couple of reasons this week, one circumstantial and one sad.
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I have asked for reports from local parent support organizations by next Monday, July 15, 2013, on the number of births they have welcomed in 2013 and in the past several years. The more reports received from across the nation will give a better picture of whether this is a part of a national trend.
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A recent news story reported as a surprising result that hundreds of parents had volunteered to adopt a child when the call was put out. The turnout was indeed overwhelming, but in the end only one couple will adopt this child. Hopefully the hundreds of others will reach out to adopt the many other children […]
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In a recent editorial, USA Today’s editorial board expressed “Our view” that discriminates against Down syndrome and perpetuates the societal stigma against those with the genetic condition.
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