How a lipstick label, hazing in the NFL, and an Oscar-favorite film inform how we view other people:
Continue reading... November 7, 2013
My daughter is not a ret*rd: Sephora’s Celebut*rd, Miami Dolphins’ N-word, & 12 Years a Slave
November 6, 2013
The Case for Conserving Disability
Following up on a previous post, here’s highlights from “the case for conserving disability” by Rosemarie Garland-Thomson. I hope the quoted selections below suggest the ability to completely change your perspective on disability that Garland-Thomson’s article did when I read it.
Continue reading... November 5, 2013
The limitations of genetic testing: how a mom was told her son with Down syndrome would run the New York City marathon
Visit NBCNews.com for breaking news, world news, and news about the economy This past weekend was the New York City marathon. Among the 50,000 runners was Jimmy Jenson, who no one could have expected he would be there on the day he was born.
Continue reading... November 4, 2013
We are all uniquely written (not like a set of encyclopedias)
In 2008, I attended the American Congress of Obstetricians & Gynecologists (ACOG) annual convention where the keynote address compared our genetic code to a set of encyclopedias. Here’s how newer genetic testing is rewriting this metaphor for who we are.
Continue reading... November 1, 2013
People with Down syndrome love their lives.
This is the third in a series of posts about how parents feel about their child with Down syndrome, how siblings feel about their brother or sister, and now, how the individuals with Down syndrome feel about themselves.
Continue reading... October 31, 2013
On having a brother or sister with Down syndrome
Today is the last day of National Down Syndrome Awareness Month. And, tonight, my son and daughter will go trick-or-treating for Halloween. What is the effect on siblings of having a brother or sister with Down syndrome?
Continue reading... October 30, 2013
On parenting a child with Down syndrome
October is winding down and with it, National Down Syndrome Awareness Month. I wanted to share two studies on a key concern of expectant parents when they find out their child has Down syndrome.
Continue reading... October 29, 2013
News coverage on the Kentucky Down Syndrome Information Act
In 2013, as part of October being National Down Syndrome Awareness Month, WHAS-11, the local ABC affiliate, hosted my daughter and me for a segment on the Kentucky Down Syndrome Information Act.
Continue reading... October 28, 2013
Bound by love
October is National Down Syndrome Awareness Month. Here’s something new parents likely can’t be aware of when they first get the diagnosis that their child has Down syndrome.
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