A study released in February 2014 did lead to non-invasive prenatal screening (NIPS) being offered to all expectant women. Here’s three points about the new study:
Continue reading... February 26, 2014
Buddy Walk on Washington & the Down Syndrome Affiliates in Action Conference
It’s one of my favorite times of the year: this week is the National Down Syndrome Society’s Buddy Walk on Washington and the Down Syndrome Affiliates in Action annual conference.
Continue reading... February 25, 2014
Down syndrome is/is not a superpower
How should moms tell their children that they have a disability? Well, there seems to be a disagreement about that.
Continue reading... February 20, 2014
Jerry Seinfeld: mocking the “mentally handicapped”? Really?
Tuesday night, I stayed up to catch Jerry Seinfeld be the first stand-up on the Tonight Show with Jimmy Fallon. I wish I hadn’t.
Continue reading... February 19, 2014
What’s missing from non-invasive prenatal testing for Down syndrome
Given all the attention the past few years on advances in prenatal testing, it should be relatively simple to decide what prenatal testing an expectant mother should have if she chooses to accept prenatal testing, right? Well, not exactly.
Continue reading... February 18, 2014
Erecting and tearing down barriers to inclusion
Between attending the Society for Maternal-Fetal Medicine annual conference one week, celebrating my son’s birthday the next, and now preparing to attend the Down Syndrome Affiliates in Action conference, I have a backlog of news headlines I’ve been meaning to share. Here are some on how measures large and small can impact and include those […]
Continue reading... February 13, 2014
Our story: our son turns eight years old
Yesterday, I spent most of my time tracking down the situation for a local 6-year old girl with Down syndrome who had been abandoned by her mother for 6 days. Fortunately, this child not only survived (which should impress anyone that a 6-year old with Down syndrome survived on her own for 6 days), but […]
Continue reading... February 11, 2014
Abortion, in the news
Abortion is inextricably intertwined with prenatal testing for Down syndrome and remains the option most women choose following a prenatal test result. As such, here are some items about abortion offered pursuant to the purpose of this blog: providing information for those involved in prenatal testing for Down syndrome.
Continue reading... February 10, 2014
Risk-free prenatal testing may increase risk of prenatal testing
In 2014, I attended the Society for Maternal-Fetal Medicine (SMFM) annual conference. Turns out, research presented there showed that a prediction of mine is happening: non-invasive prenatal screening may increase the risk of diagnostic prenatal testing.
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