This week Americans will go to the polls to vote in the mid-term elections. But, on one policy measure concerning Down syndrome, political party is irrelevant.
Continue reading... October 30, 2014
The “tender languor” of Down syndrome
What if one of the ways you could diagnose a person’s genetic condition was based on how their body feels?
Continue reading... October 26, 2014
small talk (about BIG things)
I’m having the pleasure of reading Amy Julia Becker’s newest book, small talk. I expect you will enjoy it as well.
Continue reading... October 23, 2014
Medical outreach as cosmic justice
This past weekend, I trained the Bloomington, Indiana-based parent support organization, the Down Syndrome Family Connection, on engaging in effective medical outreach. What I didn’t share at the training was how it was a bit of cosmic justice for what happened in Bloomington years ago.
Continue reading... October 21, 2014
How to deliver a Down syndrome diagnosis … better
Too many parents have bad experiences from how their medical team delivered the diagnosis that their child has Down syndrome. Fortunately, research, guidelines, and online training exist on how best to deliver the diagnosis.
Continue reading... October 17, 2014
Three years on, what have we learned about non-invasive prenatal screening?
Three years ago, a new prenatal test for Down syndrome entered the market offering earlier, safer, and more accurate results. What have we learned about this new technology since then?
Continue reading... October 16, 2014
The ripple effect of medical outreach
As part of my work with the National Center, we exhibit at medical professional conferences. I look forward to hearing how our efforts effected positive change in serving patients.
Continue reading... October 13, 2014
Into our 2nd decade of Down syndrome awareness walks
My family attended our local Down syndrome walk for the 11th straight year. If you haven’t already, I hope you’ll make this year your first of many of attending your local organization’s walk.
Continue reading... October 6, 2014
Don’t predict what a person with Down syndrome can’t do
This Saturday, after our local Down syndrome awareness walk, the film “Produce” had it’s Louisville premiere. It showed how you can’t predict what a person with Down syndrome will be able to do.
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