What’s wrong is that the decision was made after receiving false information, not all the information, and without seeking more information. And, what’s more, this is happening so often as to be the norm of how prenatal testing is administered.
Continue reading...What’s wrong with the Yahoo! story of why a mom terminated her pregnancy for Down syndrome
The trade-offs of prenatal testing for Down syndrome
In the first article in the January 2015 edition of Bioethics devoted to prenatal genetic testing, Jenny Hewison addresses the psychological trade-offs pregnant women must make with prenatal testing decisions.
Continue reading...Our story: James turns 9
I want to turn to someone who doesn’t receive as much attention here as he should: my son, who turns 9 years old today.
Continue reading...Same birthday, competing legacies
Ten score and several years ago today, Abraham Lincoln was born. On that same February 12, 1809 Charles Darwin also was born. The ideas championed by these men and their competing legacies twist through history like the spiraling parallel sides of DNA.
Continue reading...Leo, abandonment, & life with Down syndrome in some places
The story of baby Leo, his parents’ divorce, and his father’s fundraising has blown up on the internet. Here’s something that may be getting lost in the shuffle.
Continue reading...A new bioethics needed for prenatal testing
So argues the lead editorial of the January edition of the scholarly journal Bioethics. I think the authors are right.
Continue reading...From the news page: NHL, NPR, NIH, & Baby Gammy Update
From the News page, some good news, some incorrect news (reporting), and a new development for Baby Gammy:
Continue reading...COMMENTS DUE TODAY: FDA considering regulating cell free DNA testing
The FDA is considering regulating laboratory developed tests (“LDTs”). MaterniT21, verifi, Harmony, and Panorama are all LDTs. Today is the last day to submit comments to the FDA. Here’s mine on why the FDA should regulate LDTs.
Continue reading...Ignorant people say stupid things about Down syndrome
From the news page, purportedly independent-thinking people say stupid things about Down syndrome, while a grandmother shares wisdom gained from having a granddaughter with Down syndrome.
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