Without a doubt, in the post-Roe world, Down syndrome abortion ban laws will be upheld.
Continue reading... June 29, 2022
National Down Syndrome Organizations Respond to Overturning of Roe v. Wade
Well, actually, at the time of this writing, neither national Down syndrome advocacy organization has issued a statement concerning the Supreme Court’s overturning of Roe v. Wade in the Dobbs v. Jackson Women’s Health Organization decision, issued Friday, June 24, 2022. Here’s what they should say:
Continue reading... February 23, 2022
Support for New & Expected Parents of Children with Down syndrome at the 2022 Down Syndrome Affiliates In Action Conference
This past weekend, I exhibited and presented at the 2022 Down Syndrome Affiliates in Action (DSAIA) Conference in Las Vegas, Nevada. I discovered a resource I have not highlighted here and wanted to list other resources present that are recognized by professional guidelines to be given to new and expectant parents.
Continue reading... January 3, 2022
NY Times: Prenatal Tests for Rare Disorders “Usually Wrong”
A New York Times report finds that prenatal genetic tests advertised for their accuracy are usually wrong when reporting results for rare genetic conditions.
Continue reading... September 2, 2021
Supreme Court Allowing Texas Abortion Law: Further Evidence Prenatal Testing is about Abortion
The above photo was shared by my kids’ maternal grandmother today, and it made me very happy and winsome for a time of such innocence. Elsewhere, someone wrote something stupid and bigoted on Twitter that made me sad and infuriated. But, unfortunately, it was further evidence that, in the end, prenatal genetic testing’s administration is […]
Continue reading... June 22, 2021
Ch. 5, Part 5: National Down Syndrome Support Organizations
After covering a few other written resources not mentioned in a previous section of this chapter, I then turn our attention to the existing national Down syndrome support organizations.
Continue reading... June 16, 2021
Ch. 5, Part 4: A Nationwide Down syndrome First Call Program
Without any federal support, the Massachusetts Down Syndrome Congress has launched a nationwide first call program for new and expectant parents learning their child has Down syndrome. Read on about this excellent resources and why it launches over a decade after Congress authorized exactly this resource by a unanimous vote.
Continue reading... June 3, 2021
Ch. 5, Part 3: Written & online resources for parents about Down syndrome
The previous section of Chapter 5’s exploration of available supporting resources for new and expectant parents discussed the importance of accurate, up-to-date, balanced resources about Down syndrome. This section describes the three resources identified by major medical organizations to be provided to parents.
Continue reading... May 25, 2021
Ch. 5, Part 2: Accurate, balanced, up-to-date information about Down syndrome
In this second section of Chapter Five’s discussion of the available support resources for new and expectant parents of children with Down syndrome, I discuss what every medical guideline recommends and what all parents want–accurate, balanced, up-to-date information–and how the resource providing that information was developed.
Continue reading...
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