On August 21, 2017, the first full solar eclipse spanned the continental United States. Our family was there to see it and the experience prompted this reflection on what the world is doing to those with Down syndrome.
Continue reading... August 16, 2017
Persistent challenges: bigotry and ethical prenatal testing
A visit to National Park sites, a presentation to medical professionals in Kansas City, a violent protest in Charlottesville, and a news report out of Iceland all came together in less than a week as a reminder of the persistent challenge of our bigotry against our fellow human beings.
Continue reading... July 27, 2017
Iowa Supreme Court recognizes wrongful birth claim
On June 2, 2017, the Iowa Supreme Court recognized for the first time the claim of “wrongful birth”. The Court also recognized that the state legislature may enact legislation barring such claims.
Continue reading... July 12, 2017
Research & Potential Treatments for Down Syndrome: What Do You Think?
At the beginning of June, I attended a conference of researchers seeking treatments for conditions associated with Down syndrome. This month, a survey is seeking your input on what you think about treatments for Down syndrome.
Continue reading... July 7, 2017
Baby Doe Redux, but even worse
In March, parents trusted their doctors with the care for their son with a very rare condition. The doctors have now convinced courts to rule that death is more beneficial for the child than continued treatment. And, the parents can’t do anything about it.
Continue reading... June 12, 2017
Adoption: Absolutely Beautiful
Here is a nine-minute video that introduces the National Down Syndrome Adoption Network and its director, Stephanie Thompson.
Continue reading... April 25, 2017
Our Story: D.C. & Agitate. Agitate. Agitate. (3 of 3)
This is the third and final installment on our Spring Break trip to Washington, D.C. It concludes with an admonition on what those who would advocate for oppressed groups should do.
Continue reading... April 17, 2017
Our Story: D.C. & Traveling with a Child with Down syndrome (2 of 3)
This is the second of three installments about our family’s recent tour of D.C. for the kids’ Spring Break. The first installment provided a rundown of the many sites we visited. This post will share a message for new and expectant parents of children with Down syndrome (but others may appreciate it as well).
Continue reading... April 10, 2017
Our Story: D.C. & Interconnected Lives (1 of 3)
Spring Break 2017 was spent touring the District of Columbia with an emphasis on National Parks Service sites. Here is the first of three posts inspired by that trip. This post is a rundown of the sites we visited and some of the highlights at each. The next post will have a message for new […]
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