Regularly there are positive news reports raising awareness about what a life with Down syndrome can be. Gerber baby food selected for the first time ever a baby with Down syndrome to be its “Gerber baby.” The re-launched American Idol featured a young man with Down syndrome singing with a contestant. And, 50 moms created […]
Continue reading...DSPTP Episode 2: Why is it called “Down syndrome”?
In episode 2, I explain why a condition caused by the presence of a third 21st Chromosome is called “Down syndrome”?
Continue reading...The #metoo epidemic no one talks about
The #metoo movement has brought down many powerful men who abused their positions to sexually harass and abuse women and men. NPR has a series on an epidemic of sexual assault that has been persistent, under reported, and rarely prosecuted.
Continue reading...I wouldn’t cure Down syndrome because then my sister would be different
Reactions to my post on if there was “cure” for Down syndrome, would you do it have come from near and far. Here’s a summary, concluding with an honest, heartfelt response from very near to me.
Continue reading...Cure for Down syndrome promised with just a single injection
If you could give your loved one with Down syndrome a shot that would eliminate their extra 21st Chromosome, would you? This may be a very real question in the not too distant future.
Continue reading...The cold, dumb logic of cost-effectiveness justification for prenatal genetic testing
Down syndrome has long been called the “canary in the genetics coalmine.” Here’s another example of why.
Continue reading...Our Story: Support when you need it
Over Labor Day weekend, we experienced an emergency situation. Fortunately, support was there when we needed it.
Continue reading...Ohio’s Down Syndrome Abortion Bill: Avoiding the Issue
For the second time, an Ohio state representative has introduced a bill to ban abortion when the stated reason is a prenatal test result for Down syndrome. The debate about the bill, and the measure itself, avoid the issue about Down syndrome selective abortion.
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