On December 3, 2014, a historic vote took place. It was eight years in the making. Continue Reading
November 19, 2014
Don’t abort based on MaterniT21
Or based on Harmony, verifi, Panorama, or any of the new prenatal blood-based tests for Down syndrome. Continue Reading
November 13, 2014
That transforming 21st chromosome
At this week's AUCD conference, I got to see how the 21st chromosome has transformed since 1970. Continue Reading
November 3, 2014
Election day: Down syndrome & politics
This week Americans will go to the polls to vote in the mid-term elections. But, on one policy measure concerning Down syndrome, political party is irrelevant. Continue Reading
October 26, 2014
small talk (about BIG things)
I'm having the pleasure of reading Amy Julia Becker's newest book, small talk. I expect you will enjoy it as well. Continue Reading
October 23, 2014
Medical outreach as cosmic justice
This past weekend, I trained the Bloomington, Indiana-based parent support organization, the Down Syndrome Family Connection, on engaging in effective medical outreach. What I didn't share at the training was how it was a bit of cosmic justice for what happened in Bloomington years ago. Continue Reading
October 21, 2014
How to deliver a Down syndrome diagnosis … better
Too many parents have bad experiences from how their medical team delivered the diagnosis that their child has Down syndrome. Fortunately, research, guidelines, and online training exist on how best to deliver the diagnosis. Continue Reading
October 6, 2014
Don’t predict what a person with Down syndrome can’t do
This Saturday, after our local Down syndrome awareness walk, the film "Produce" had it's Louisville premiere. It showed how you can't predict what a person with Down syndrome will be able to do. Continue Reading
October 2, 2014
Louisville Premiere: “Produce” the Movie!
This Saturday night is the Louisville premiere of the movie Produce. What a great way to kick off National Down Syndrome Awareness Month. Continue Reading
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