October is National Down Syndrome Awareness Month. In 2015, groups combined in an effort to ensure patients receive accurate information with the delivery of a test result of Down syndrome for their child. Continue Reading
September 21, 2015
Balancing prenatal information: medical outreach by local Down syndrome support organizations
Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap. Continue Reading
August 25, 2015
CNN’s Alisyn Camerota: fact-checking claimed “costs” of Down syndrome lives
In discussing a recent state bill to ban Down syndrome selective abortions, CNN's Alisyn Camerota corrected her guest on his figures, but the ones she cited are even more troubling. Continue Reading
July 20, 2015
The NDSC & DSMIG Conferences: Alzheimer’s, regression, resources, & friends
How can a person have Alzheimer's, but not? I learned about this and more at the 2015 National Down Syndrome Congress' annual convention in Phoenix, Arizona. Continue Reading
July 9, 2015
Prenatal Testing Stakeholder Symposium to be held in Washington DC
Thursday, July 16, 2015, an oft-stated, but rarely occurring, meeting will be held. If you can get there, I hope to see you in attendance. Continue Reading
June 23, 2015
Pixar’s Inside Out: moron, mongo, and normalizing disability bigotry
Pixar released a movie Inside Out featuring characters embodying human emotions which are played out inside people's minds. A mom calls attention to how Pixar has normalized disability bigotry for viewers of Inside Out. Continue Reading
June 17, 2015
What exactly is MaterniT21, Harmony, verifi, & Panorama testing?
If more women were accurately counseled about what exactly cell free DNA is testing, they would immediately understand that their test results are never diagnostic. Continue Reading
May 28, 2015
Caring for individuals with Down syndrome
One of the main concerns of expectant couples when they learn their child has Down syndrome is "who will help care for our son or daughter?" In the United States, it is humbling to find out how many will help care. Continue Reading
May 20, 2015
News: The corporate arms race for a better Down syndrome prenatal test
Over at the News page, there is an epic take down of efforts to develop a Down syndrome prenatal test based on a urine sample. Continue Reading
Recent Comments