Today, I am on the road to New Orleans for a wedding this weekend. But on the flight back from the ASHG conference in Boston, I read an article that made me think differently about disability. It made "The Case for Conserving Disability." Continue Reading
October 24, 2013
Who raises Down syndrome awareness at medical conferences?
October is National Down Syndrome Awareness Month. Today, I head home from the largest annual convention for genetics. Who is raising Down syndrome awareness at these conferences? Continue Reading
October 17, 2013
What have we learned about the new Down syndrome prenatal test?
In 2011, a new prenatal test for Down syndrome entered the market offering earlier, safer, and more accurate results. What have we learned about this new technology since then? Continue Reading
October 16, 2013
To raise Down syndrome awareness, get the information
With October being National Down Syndrome Awareness Month, here are two great opportunities to get the information to raise that awareness. Continue Reading
October 15, 2013
Down syndrome & National Pregnancy and Infant Loss Month
October, it turns out, is a month devoted to raising awareness about many things. In addition to being Down syndrome awareness month, it is also National Pregnancy and Infant Loss Month. Here's where the two overlap. Continue Reading
October 10, 2013
The Golden Rule, as applied to Down syndrome treatments
I'm traveling today. Fortunately, Amy Julia Becker has graciously featured a revised post of mine at her site today. Becker is a fellow parent whose helpful book on prenatal testing I reviewed at this post. My piece today is part of a series Becker is featuring on the possible treatments for Down syndrome. Please comment on my post there (getting 13 comments would make it the most commented post in this series so far) and continue to check Becker's site regularly. Continue Reading
October 9, 2013
Why is Down syndrome a syndrome?
October is National Down Syndrome Awareness Month. In previous posts, I've discussed what is Down syndrome and why the condition is called "Down syndrome." But why is it a "syndrome?" Continue Reading
October 8, 2013
What’s the point of Down syndrome awareness?
October is National Down Syndrome Awareness Month. But, what's the point of raising awareness about Down syndrome? Continue Reading
October 3, 2013
The Transformative Experience of Down Syndrome
Today my local paper ran my op-ed (available here) on how knowing someone with Down syndrome can be a transformative experience. Here are the links for the examples I use in the column. Continue Reading
Recent Comments