Last week, Governor O'Malley of Maryland and then Governor Markell of Delaware each signed laws requiring that their state agencies provide accurate, up-to-date information about Down syndrome for parents receiving a test result. They join Massachusetts (2012) and Kentucky (2013) in passing such legislation. Continue Reading
May 9, 2014
Support moms grieving their lost child
This Mother's Day, will you support those mothers who are grieving the child they lost? Continue Reading
May 8, 2014
Your MaterniT21 test is NEVER positive
And it's NEVER negative, either. Continue Reading
May 1, 2014
We shouldn’t have to justify children with Down syndrome being born
Rachel Adams, the author of Raising Henry, has a piece in the new issue of American Journal of Medical Genetics, Part A. You should read it and its lines should be inscribed in offices around the world. Continue Reading
April 15, 2014
Today Baby Doe Died
Today was the day in 1982 when Baby Doe died in a maternity ward in a hospital in Indiana. He died because his doctor advised his parents that they could "do nothing." Continue Reading
April 14, 2014
Physicians: too many doing Down syndrome prenatal testing wrong
A study of parents of children with Down syndrome reports on their experiences with finding out the diagnosis. It finds that too many physicians still are doing it wrong. Continue Reading
April 11, 2014
News: Realizations from having a child with Down syndrome
Been a while since I updated the News page. Here's some posts from recent days on realizations parents, particularly moms, have made in having a child with Down syndrome. Continue Reading
April 1, 2014
Breaking news: prenatal testing for Down syndrome done right from now on
Prenatal testing for Down syndrome will be done right going forward from today. Continue Reading
March 26, 2014
Presenting at the ACMG annual meeting in Nashville
For the rest of this week, I will be attending the American College of Medical Genetics and Genomics Annual Meeting. It's being held in one of my favorite towns, Nashville, Tennessee. Hence my choice of footwear pictured at right. Continue Reading
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