A Scottish doctor considers Down syndrome prenatal screening bad medicine and a survey of British hospital ethics committees finds it unethical. Continue Reading
August 7, 2014
What are national advocacy organizations doing about the high termination rate for Down syndrome?
Monday, Matthew Hennessy wrote about my posts covering the reasons a pamphlet was created when the identified resource had already been established. But his critique is off target. Continue Reading
August 1, 2014
Which is the harder choice after a prenatal diagnosis: continuing or terminating?
A recent news story presents the question all expectant mothers receiving a prenatal test result for Down syndrome will have to answer for themselves: which is the harder choice, continuing the pregnancy or terminating it? Continue Reading
July 30, 2014
How a pamphlet did not provide information to expectant mothers
The development and re-development of Global Down Syndrome Foundation's (GDSF) pamphlet for expectant mothers (which covers prenatal testing options and the basics about Down syndrome) has deprived women of professionally recommended information about Down syndrome for years. Continue Reading
July 25, 2014
Pennsylvania passes the Down Syndrome Information Act
In 2014, Pennsylvania joined the growing number of states passing the Down Syndrome Information Act. It's implementation needs to be improved. Continue Reading
July 24, 2014
A pamphlet supposed to be for post-diagnosis must discuss prenatal testing?
At least that's what it's creator says. Continue Reading
July 17, 2014
The 2014 NDSC Convention: prenatal testing for Down syndrome resources
At the 2014 National Down Syndrome Convention in Indianapolis, Indiana, David Tolleson, NDSC's executive director, and Michelle Whitten of Global Down Syndrome Foundation (GDSF) presented on their organizations' updated prenatal testing pamphlet. Here are some observations from that presentation. Continue Reading
July 14, 2014
The 2014 NDSC Convention: reuniting & making new friends
The National Down Syndrome Congress Annual Convention just concluded this weekend. It was a very cool experience giving and attending presentations and reuniting with and making new friends. Continue Reading
July 10, 2014
Narrative ethics: the power of story in prenatal testing for Down syndrome
This week has brought a confluence of evidence to me showing the power of story in delivering a Down syndrome diagnosis. Continue Reading
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