It's one of my favorite times of the year: this week is the National Down Syndrome Society's Buddy Walk on Washington and the Down Syndrome Affiliates in Action annual conference. Continue Reading
February 25, 2014
Down syndrome is/is not a superpower
How should moms tell their children that they have a disability? Well, there seems to be a disagreement about that. Continue Reading
February 20, 2014
Jerry Seinfeld: mocking the “mentally handicapped”? Really?
Tuesday night, I stayed up to catch Jerry Seinfeld be the first stand-up on the Tonight Show with Jimmy Fallon. I wish I hadn't. Continue Reading
February 18, 2014
Erecting and tearing down barriers to inclusion
Between attending the Society for Maternal-Fetal Medicine annual conference one week, celebrating my son's birthday the next, and now preparing to attend the Down Syndrome Affiliates in Action conference, I have a backlog of news headlines I've been meaning to share. Here are some on how measures large and small can impact and include those with Down syndrome and other disabilities: Continue Reading
February 13, 2014
Our story: our son turns eight years old
Yesterday, I spent most of my time tracking down the situation for a local 6-year old girl with Down syndrome who had been abandoned by her mother for 6 days. Fortunately, this child not only survived (which should impress anyone that a 6-year old with Down syndrome survived on her own for 6 days), but has been reunited with a loving foster family who had intended to adopt her before her mother took back custody. Comforted in knowing this girl is in a safe place, I want to turn to someone who Continue Reading
January 31, 2014
Structural violence against those with intellectual disabilities
Thank God it's Friday because, while there was a lot of good news this week, it had some pretty bad news as well. And, that's beyond Atlanta coming to a stop by a few inches of snow. In bioethics, there's this idea called "structural violence," where little and big things in a society can enact violence on those who are in the minority or under-privileged. These headlines show there's still structural violence against those with intellectual disabilities. Continue Reading
January 29, 2014
From the News Page: Son with Down syndrome “a gift from God” says Rep McMorris Rodgers
Today's news features only positive news: Rep. Cathy McMorris Rodgers talked about her son and Down syndrome in response to President Obama's State of the Union address, a Chelsea football club, an Irish cartoon, a toddler wanting to get on the Ellen show, a movie screening, and an image that answers what to call someone with Down syndrome. Enjoy. Continue Reading
January 28, 2014
From the News Page: The State of the Union & the ABLE Act, an Adopted Son, & Inclusion @Target
From the News page: Rep. Cathy McMorris Rodgers, who gives the Republican Response to tonight's State of the Union, calls for passing the ABLE Act; a mom of an adopted son with Down syndrome challenges perspectives; and, Target demonstrates inclusion in its advertising. Continue Reading
January 27, 2014
From the News Page: Inspiraporn, the State of the Union, & Down Syndrome Health Care Guidelines
From the News Page: Co-Chair of the Congressional Down Syndrome Caucus, and mom, Rep. Cathy McMorris Rodgers will deliver the Republican Response to tomorrow's State of the Union address. Dr. Skotko delivers a Grand Rounds presentation on updated Down syndrome health care guidelines. A St. Louis OB writes about the new prenatal testing. A panel of parent/authors speak tonight at Columbia. And, a mom takes on Inspiraporn! Continue Reading
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