My daughter, before her first dance recital Here is the third installment (you can catch up on one and two, here). After dealing with some emotion, we are buoyed by the immediate support we received, our first victory over expected delays, and our daughter gets named. Continue Reading
March 28, 2020
Chapter 1, Part 2
Juliet at 6 months (I believe) Here is part 2 of Chapter 1. In case you missed it, you can catch up where this part picks up by first reading part 1 here. This post describes the first few minutes after my daughter was born and two words were said that changed our lives. Continue Reading
March 27, 2020
The Stockdale Paradox & Coronavirus: pushing back against discriminatory rationing
New York Times COVID-19 Reported Cases Map, March 27, 2020 “This is a very important lesson. You must never confuse faith that you will prevail in the end—which you can never afford to lose—with the discipline to confront the most brutal facts of your current reality, whatever they might be.” Continue Reading
March 21, 2020
Chapter 1, Part 1
Juliet, on the day she was born Here starts a project that we'll see how long and well it goes, which will largely be based on your readership and feedback. Continue Reading
March 14, 2020
Coronavirus pandemic, discrimination, and cold reality
What can be expected as the coronavirus pandemic expands, with more and more positive cases being reported? For those with Down syndrome, they should expect discrimination and, therefore, should plan to deal with this cold reality. Continue Reading
January 23, 2020
Lowest Number of Expected Births, but not for Babies with Down syndrome
CDC report on expected number of births a woman will have in her lifetime The CDC reports that as of 2018 in the United States, the expected number of births a woman would have over her lifetime is at a record low. But, according to recent reports, the number of babies with Down syndrome is not declining. Continue Reading
November 12, 2019
National Council on Disability: Genetic Testing and the Rush to Perfection
As the photo tells you, the headline is from the October 2019 publication by the National Council on Disability: "Genetic Testing and the Rush to Perfection." You can access the full report here. The NCD makes key recommendations after surveying how prenatal testing is being done and what the future portends. Continue Reading
September 12, 2019
Peanut Butter Falcon: A New Way of Calling Someone the R-word
A film starring an actor with Down syndrome alongside A-list stars provides an insight on how you can call someone the "R"-word without even saying it. Continue Reading
September 4, 2019
A Developing Legal Norm: Accurate Information Must be Provided with Down Syndrome Test Result
States with laws mandating accurate information with a Down syndrome prenatal test result As of 2019, nineteen states have laws that require the provision of accurate written information and referral to local parent support organizations when a health care provider delivers a pre- or post-natal test result for Down syndrome. With this many state laws, this requirement is a developing legal norm. Continue Reading
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