This week, a purchase from Sevenly will provide a book that gives critical information to expectant parents who have recently learned about a prenatal diagnosis of Down syndrome. With your support, parents will receive tools and support, empowering them to cope and prepare for the challenges and rewards in store for them. Your purchase will give much more than a book, it will give a family a lifeline. Continue Reading
June 20, 2013
How do you view those labeled “handicapped”?
I was part of the generation that grew up with Mr. Rogers. In his caring way, he taught us many things. Some videos now available on YouTube share his lesson in word and deed on how to view others, particularly those with disabilities. Continue Reading
June 19, 2013
The Shape of the Eye: our diagnoses do not define us
The Shape of the Eye was originally published in 2011. This Spring, it was re-issued in paperback and is enjoying the attention it deserves. A memoir by George Estreich about many things, but prompted by the birth of his daughter Laura, it has much to share for all of us. Continue Reading
June 18, 2013
The power of context: how what’s missing informs the context
In previous posts, I have asked whether Down syndrome is already disappearing and the power of context as the remaining element to tip prenatal testing to the point of an epidemic. Here's how the first post reinforces the second. Continue Reading
June 15, 2013
For Father’s Day: what to do after a Down syndrome prenatal test result
Last week, a mom posted what she would like a mother with a Down syndrome prenatal test result to know. It inspired Tim Shriver, Chairman and CEO of Special Olympics, to offer his own thoughts. So, for what it's worth, on this Father's Day, here's my two cents. Continue Reading
June 14, 2013
It’s not about information; it’s about selling information
Yesterday, the United States Supreme Court ruled that genes cannot be patented. This may not stop competing NIPS labs from trying to enjoin their competitors. But, the ruling reveals a point that gets lost in the celebration of genomics. Continue Reading
June 12, 2013
The power of context to create a Down syndrome prenatal testing epidemic
In his National Bestseller, The Tipping Point: how little things can make a big difference, Malcolm Gladwell identifies three elements to creating an epidemic, from the spread of disease to a social trend. With two of the three being built into prenatal testing for Down syndrome, the final element will determine the tipping point of whether prenatal testing becomes an epidemic. Continue Reading
June 5, 2013
What are we losing if Down syndrome disappears?
In a previous post, I reported on an account that suggests Down syndrome may already be starting to disappear from our society. But, if that is the case, what are we losing if Down syndrome disappears? Continue Reading
June 4, 2013
You may decline prenatal testing, but you may be choosing to be sued if you do
Last week, Art Caplan, a well-known bioethicist, wrote a post for Harvard Law's Bill of Health blog. The post prompted one commenter to write, "Caplan, you are a laughable clown." Whatever did Caplan write? Continue Reading
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