Today is #GivingTuesday. Here are 3 easy steps you can take today to increase Down syndrome awareness with medical professionals and new and expectant parents. Continue Reading
November 2, 2015
Sequenom’s Whole Genome Sequencing: Reckless Prenatal Care
Sequenom, the maker of MaterniT21, has announced a further expansion of its testing: MaterniT Genome. This continues the reckless practice of prenatal genetic testing. Continue Reading
October 19, 2015
Rewriting the story of Down syndrome
For many, thanks to deinstitutionalization, education inclusion, and medical treatments, they know a different Down syndrome than others. This new knowledge is rewriting the story of Down syndrome. Continue Reading
October 14, 2015
Laws require Doctors give Down syndrome information with prenatal test
October is National Down Syndrome Awareness Month. In 2015, groups combined in an effort to ensure patients receive accurate information with the delivery of a test result of Down syndrome for their child. Continue Reading
September 28, 2015
Our story: turning two-thirds of a trisomy
Today is my birthday. This year, I'm two-thirds the number of chromosomes for trisomy 21. Continue Reading
September 21, 2015
Balancing prenatal information: medical outreach by local Down syndrome support organizations
Prenatal testing for Down syndrome is supposed to be about providing information to expectant mothers. But, most mothers are not receiving all the information. Some local support organizations are trying to bridge this information gap. Continue Reading
September 17, 2015
A birthday card & David Foster Wallace’s This is Water
Saturday, I went to see the film, "The End of the Tour," about David Lipsky's interview of the author David Foster Wallace. Earlier that day, I received my first card for my birthday at the end of the month. The card exemplified what Wallace called the big "T" truth. Continue Reading
September 10, 2015
Our story: defying expectations to make a difference
Over the Labor Day Weekend, my kids and I went camping at Lincoln State Park in Southern Indiana. As my daughter walked where Lincoln did, I thought of defying expectations to make a difference. Continue Reading
August 26, 2015
Ohio pro-life bill incentivizes Down syndrome selective abortion
The Ohio legislature is considering a bill that would ban an abortion because of a Down syndrome prenatal test result. But, there could be a disturbing unintended consequence if the bill becomes law. Continue Reading
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