Wednesday, August 22, 2018, Down Syndrome Affiliates in Action will host a webinar on building relationships with medical professionals beginning at 1 pm, EST. I hope you will join us for this training and discussion that is vital if new and expectant parents' experiences are to improve when being told a test result for Down syndrome. Continue Reading
August 8, 2018
Our Story: Traveling with Juliet
With school back in session next week, I took the kids on another week-long trip visiting six national park sites and much more. Here is what it was like to travel with my daughter, Juliet. Continue Reading
July 26, 2018
Gone: Planned Disappearance of Down syndrome
On our trip out west to Yellowstone National Park, we took in so many splendid sights. Then, on the eighth day of travel, I woke up with a sense of dread about what we hadn't seen on our trip. Continue Reading
June 28, 2018
Our Story: 16 days, 18 National Park Service Sites, Everyone Survived
What follows is a travelogue of the trip out west I took with my twelve year old son and thirteen year old daughter. We drove over 4,000 miles, towing a travel trailer, for 16 days, crossing eight states, and visiting 18 National Park Service Sites. I hope you'll join me on this look back at our ride out west. Continue Reading
June 20, 2018
10-year old Mexican girl with Down syndrome taken from mom under Trump policy illustrates injustice
Social media and news reports have been flooding in due to the Trump administration's "zero tolerance" immigration policy resulting in children being separated from family members attempting to enter the United States. The Mexican Foreign Minister Luis Videgaray has highlighted the case of a 10-year old girl with Down syndrome being separated from her mom, despite her father, a U.S. citizen, residing just 60 miles from where she was detained. This case illustrates injustice. Continue Reading
May 30, 2018
Our Story: Choosing to take the journey
Today, I leave with my two kids, towing a travel trailer, to drive to Yellowstone National Park. The trip will be fraught with challenges and risks. Yet, we are choosing to take the journey. Continue Reading
May 8, 2018
Avengers Infinity War, utilitarian ethics, and prenatal testing
The blockbuster movie Avengers - Infinity War features heroes and villains sacrificing for what they perceive is the greater good. The ethical issues in the movie are shared in how prenatal testing is administered, but with a key distinction. Continue Reading
March 27, 2018
Discriminatory impact of Down syndrome selective abortion
Regularly there are positive news reports raising awareness about what a life with Down syndrome can be. Gerber baby food selected for the first time ever a baby with Down syndrome to be its “Gerber baby.” The re-launched American Idol featured a young man with Down syndrome singing with a contestant. And, 50 moms created a carpool karaoke video with their children with Down syndrome that moved James Corden to tears. But, it has not been all good news reported. Continue Reading
January 29, 2018
The #metoo epidemic no one talks about
The #metoo movement has brought down many powerful men who abused their positions to sexually harass and abuse women and men. NPR has a series on an epidemic of sexual assault that has been persistent, under reported, and rarely prosecuted. Continue Reading
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