What should you do if you are attending the Down Syndrome Affiliates in Action Annual Conference? Continue Reading
February 12, 2013
Two birthdays with competing legacies
Ten score and four years ago today, Abraham Lincoln was born. That same day 204 years ago also was the birthday of Charles Darwin. The competing legacies of these two men twist through history like the spiraling parallel sides of the DNA molecule. Continue Reading
February 7, 2013
What I hope Daniel Day-Lewis says at the Oscars
Daniel Day-Lewis is the odds-on favorite to win a historic third Best Actor Oscar. I hope he will say what we thought he would say in 2008, and speak to the billion people watching on the value of his brother-in-law. Continue Reading
January 17, 2013
A Dream of a Brighter Future
Monday is Martin Luther King, Jr. Day. It seems fitting to observe on this holiday honoring the great civil rights leader what many have called the next civil rights movement. The new wave of prenatal testing advances has brought into focus what we mean by America's creed that all are created equal. Continue Reading
January 17, 2013
I didn’t expect them to be as good as they are
The featured video is about the Jensen-Schmidt Tennis Academy for Down syndrome and runs around 5 minutes. The Academy is a two-day program where individuals with Down syndrome of all ages are paired one-on-one with volunteer instructors to take them through drills and learn tennis basics. The Academy was the inspiration of a father of a child with Down syndrome and a French Open Doubles winner. The messages from the parents are touching and the ones from the volunteers are powerful. Continue Reading
January 16, 2013
We are what we decide to be
One mother's take on raising her daughter with Down syndrome, who she describes as "perfect." As though in response to the quote I wrote about at this post, this mom has a different perspective: that her daughter is her "every day reminder that we are what we decide to be." Continue Reading
January 15, 2013
Words matter: how to describe NIPT & Down syndrome
This news report is far better than most I have seen in providing balance in the information shared about the new non-invasive prenatal testing (NIPT) for Down syndrome (and it's the first I ever remember seeing where an amniocentesis is actually filmed as it is performed). That said, what words or phrases or the way the information is presented jump out at you as having room for improvement in being less biased against Down syndrome? I have suggested to the leadership of the Canadian Continue Reading
January 14, 2013
Paradise, interrupted
Bonnie Rochman, a columnist for TIME magazine, has a new post about her trip to paradise being interrupted. It informs how a diagnosis for Down syndrome is delivered and processed by expectant parents. Rochman writes about her son entering a T-shirt shop selling shirts that made fun of individuals with intellectual disabilities. By coincidence, a family with a child with Down syndrome entered the store soon after Rochman saw the T-shirts. She writes: I felt panicky. As a mother, I wanted to Continue Reading
January 14, 2013
Guess who was at the 2013 Golden Globes?
Last year, it was a photo with George Clooney. This year, a photo with Dame Helen Mirren. I doubt Lauren's parents (or anyone for that matter) would have expected at the time the diagnosis of Down syndrome was delivered that Lauren would go on to have a recurring role in a smash TV show and attend premier Hollywood awards parties. Adding to the list of examples that demonstrate the wisdom I wrote about in this post. Continue Reading
Recent Comments