News from just the past week has featured a number of questionable headlines. See if you can spot what's wrong about them. Continue Reading
March 3, 2015
Different is not defective
Today is World Birth Defects Day, chosen for 3/3 representing the statistic that about 1-in-33 births will be born with a birth defect. Let's see how some are celebrating #WorldBDDay. Continue Reading
March 2, 2015
Florida passes the Down Syndrome Information Act
Joining the growing list of states that have passed the Down Syndrome Information Act, Florida did so before every other state but Massachusetts. Continue Reading
February 26, 2015
Some prenatal information–just to know–is unacceptable
So says Zuzana Deans, Angus Clarke & Ainsley Newson in their article in the issue of Bioethics devoted to whether a new bioethics is needed for non-invasive prenatal screening. Continue Reading
February 24, 2015
Down syndrome: dad keeps son, a mom terminates, and a state tries to ban selective abortions
Three stories that kicked off 2015 involving Down syndrome have drawn commentary from fellow parent/bloggers worth considering: Continue Reading
February 23, 2015
What’s (still) missing from the new prenatal test
At the beginning of February, the Society for Maternal-Fetal Medicine held its annual conference. Again it was reported that the new non-invasive prenatal test is inferior to traditional screening because it misses too many conditions. Continue Reading
February 20, 2015
What’s wrong with the Yahoo! story of why a mom terminated her pregnancy for Down syndrome
What's wrong is that the decision was made after receiving false information, not all the information, and without seeking more information. And, what's more, this is happening so often as to be the norm of how prenatal testing is administered. Continue Reading
February 17, 2015
The trade-offs of prenatal testing for Down syndrome
In the first article in the January 2015 edition of Bioethics devoted to prenatal genetic testing, Jenny Hewison addresses the psychological trade-offs pregnant women must make with prenatal testing decisions. Continue Reading
February 13, 2015
Our story: James turns 9
I want to turn to someone who doesn't receive as much attention here as he should: my son, who turns 9 years old today. Continue Reading
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