Archives for 2016

Abortion, the Supreme Court, & Down syndrome

Wednesday, March 2, 2016, the United Supreme Court heard arguments on the first major abortion case before it in years. It reveals what is at issue with the vacancy on the court due to Justice Scalia's death and the option most women choose following a prenatal diagnosis of Down syndrome: abortion. Continue Reading

Our story: juvenile attitudes towards people with Down syndrome

A hike through Cumberland Gap National Historical Park provided a teachable moment. Continue Reading

Envisioning a life with a child with Down syndrome

Envisioning a life with a child with Down syndrome is one of the biggest challenges for most expectant parents receiving a prenatal test result. Here's how the testing laboratories' images frame that future and what resources are available to help patients see the possibilities of a future with a child with Down syndrome. Continue Reading

How Down syndrome prenatal screening’s administration is about elimination … & what’s needed to change that

In her column in Forbes, Kavin Senapathy, a self-styled scientific mythbuster, took on claims that prenatal genetic testing has as its purpose eliminating those with Down syndrome. Unfortunately, her column retold myths and she based her mythbusting on fantasy. Continue Reading

Our story: IQ, IEPs, & Injustice

Yesterday, I attended a three-hour IEP meeting for my daughter. It demonstrated the systematic injustice that disables those it labels disabled. Continue Reading

Sarah Knapton: Please update your inaccurate, biased report on the NHS offering NIPT to high-risk mums

Sarah Knapton reports in The Telegraph that Britain's National Health Service will offer non-invasive prenatal testing (NIPT). The inaccuracies and biases of the report require an update. Continue Reading

The Parent’s Guide to Down Syndrome: A Review

There's a new resource for parents of children with Down syndrome. It may be just right for you. Continue Reading

Ohio’s Down Syndrome Fact Sheet: Revision Needed

At the end of 2014, Ohio joined the states in passing the Down Syndrome Information Act (DSIA). Almost a year later, its Department of Health has issued the fact sheet to be provided all patients. Let's take a look at it. Continue Reading

Obstetricians’ 2016 Resolutions for Prenatal Genetic Testing

With the start of 2016, obstetricians, like everyone else, are making their New Year's resolutions. Here are their resolutions for counseling their patients about prenatal genetic testing.  Continue Reading