Research now shows that a child with Down syndrome costs less than $3 a day more in health expenses than a child without Down syndrome. This research should cause obstetricians, genetic counselors, expectant parents, and policymakers to revise their view of how costly a life with Down syndrome really is (or isn't). Continue Reading
Archives for 2016
October 13, 2016
GONE: estimate reduced by 20% of people with Down syndrome in United States
In 2013, researchers estimated that the total number of people living in the United States was 40% less than the historically cited number. Three years later, that estimate has been revised down further by 20%. Continue Reading
August 25, 2016
Abortion: hard to talk about when no one will say the word
The American College of Medical Genetics & Genomics (ACMG) issued an updated statement on how cell free DNA screening should be done. It's not clear, though, why cfDNA screening should be done. Continue Reading
August 11, 2016
Our story: what we saw & learned at Western Pennsylvania NPS sites
This past weekend was the last before school began. So, we set out to Western Pennsylvania to check off a few more National Park Services sites in my kids' passport books. Continue Reading
July 15, 2016
A new web app for Down syndrome prenatal resources
There is a new way to access in more ways than ever the most widely-recognized and acclaimed resource for parents receiving a prenatal test result for Down syndrome. Continue Reading
July 1, 2016
Indiana Federal Judge: Down syndrome selective abortions will increase & preventing them would be irreparable harm
A federal judge has ruled that Indiana's statutory ban on Down syndrome-selective abortions is likely unconstitutional and to not allow women to selectively terminate would amount to irreparable harm. Continue Reading
June 16, 2016
Our Story: camping, hiking, & canoeing the Red River Gorge
This post will have many photographs of a camping trip my kids and I took. They are images that many parents can't imagine when they're told their child has Down syndrome. Continue Reading
June 6, 2016
Muhammad Ali and Predictions
On Friday, June 3, 2016, Muhammad Ali finished his last fight and left us. His life and how he lived it offered many lessons. Here's one on making predictions about another's life. Continue Reading
June 1, 2016
Our Story: An Open Thank You Note to My Daughter’s Elementary School
I'm of the generation whose mothers made them write thank you notes for gifts received. Consider this an open thank you note to the gift my daughter's elementary school gave her and us. Continue Reading
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