In case you missed it, here is the link for the radio interview I did about about my presentation at the upcoming National Down Syndrome Congress Convention.
My thanks to Mardra Sikora, Stephanie Holland, and Karen Gregoire and their Facebook group “The Road We’ve Shared” for hosting me as part of their radio blogger series. We talked of my presentation at this year’s National Down Syndrome Congress’ (NDSC) Convention and then some of the information I’ll share about prenatal testing for Down syndrome. I will be presenting Friday, July 11, 2014, at 3:30 – 5:00 pm, session 5, Room 208.
Click here for the radio interview.
Some links to posts that expand upon topics discussed in the interview:
- The National Center for Prenatal & Postnatal Down Syndrome Resources, where I serve as a bioethicist.
- The simplest measure for medical outreach, hat tip to Cam Brasington.
- The new guidelines for offering prenatal testing to all mothers & study that finds only 29% share educational materials.
- #neveralone campaign to ensure parents receive accurate information when given a prenatal test result.
- The Down Syndrome Information Act, with links to Massachusetts, Kentucky, Delaware, Maryland, and Louisiana’s version.
- Expectant mother’s views and needs when making a decision following a prenatal test result.
- Webinar on the new prenatal testing with Dr. Brian Skotko.
- The normative effect of prenatal testing, i.e. “Didn’t you get tested?”
- The transformative effect of getting to know someone with Down syndrome.
If you have questions, feel free to post them in the comments below or by e-mailing me at mleach@downsyndromeprenataltesting.com.
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