A recent publication by my colleagues and me address the various implications of Roe v. Wade being overturned for the administration of prenatal genetic testing. Continue Reading
January 3, 2023
Recommendations for Improving How Prenatal Genetic Testing is Done
From a historic summit of stakeholders come 20 recommendations for improving prenatal genetic testing to avoid bias against those with disabilities. Continue Reading
August 2, 2022
These States Should Ban Wrongful Birth Lawsuits
New York Times' Maps of State Abortion Bans Since the Supreme Court overturned Roe v. Wade in the Dobbs decision, twenty states have enacted or implemented bans on abortion. To be consistent with their policy making, almost half of them now need to ban wrongful birth lawsuits. Continue Reading
June 29, 2022
National Down Syndrome Organizations Respond to Overturning of Roe v. Wade
The Supreme Court of the United States Well, actually, at the time of this writing, neither national Down syndrome advocacy organization has issued a statement concerning the Supreme Court's overturning of Roe v. Wade in the Dobbs v. Jackson Women's Health Organization decision, issued Friday, June 24, 2022. Here's what they should say: Continue Reading
February 23, 2022
Support for New & Expected Parents of Children with Down syndrome at the 2022 Down Syndrome Affiliates In Action Conference
This past weekend, I exhibited and presented at the 2022 Down Syndrome Affiliates in Action (DSAIA) Conference in Las Vegas, Nevada. I discovered a resource I have not highlighted here and wanted to list other resources present that are recognized by professional guidelines to be given to new and expectant parents. Continue Reading
January 3, 2022
NY Times: Prenatal Tests for Rare Disorders “Usually Wrong”
A New York Times report finds that prenatal genetic tests advertised for their accuracy are usually wrong when reporting results for rare genetic conditions. Continue Reading
February 9, 2021
Doctors traumatize patients based on how they deliver a Down syndrome diagnosis
A survey of mothers of children with Down syndrome adds to the research finding a Down syndrome diagnosis is a "flash bulb memory," one remembered in vivid detail years and years later. How that diagnosis is delivered affects mothers' flash bulb memories. Continue Reading
December 10, 2020
Sixth Circuit Court of Appeals Allows Tennessee to Enforce Down Syndrome Abortion Ban
The Sixth Circuit Court of Appeals has stayed an injunction, thereby allowing the State of Tennessee to enforce its "Down syndrome abortion ban". Will it? And, what will this lead to? Continue Reading
November 11, 2020
New Visions of Possibilities: Vice President Kamala Harris & Ironman Athlete with Down syndrome Chris Nikic
Vice President-Elect Harris & Ironman Athlete Chris Nikic Saturday, November 7, 2020, was a day of several firsts, providing new visions of what is possible for groups that have for too long been burdened by low expectations. Continue Reading
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